Welcome to The National Organisation for FASD (formerly NOFAS-UK)

The National Organisation for FASD (formerly NOFAS-UK) is dedicated to supporting people affected by Foetal Alcohol Spectrum Disorders (FASD), their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.  National FASD is a source for information on FASD to the general public, press and to medical and educational professionals.

National FASD has been leading the debates in the UK since 2003.  We value diversity and place a high priority on raising the voices of those with FASD, birth mothers, adopters, foster carers, kinship carers and all those who live with and seek to help those with FASD.  We are active in social media on Facebook, Twitter, and as a founding member of the FASD UK Alliance, via the FASD UK Facebook Support Group.

We are here to help.  Please check back frequently for updates on our work and feel free to share any suggestions you might have as to ways we can further strengthen the community of people seeking change and support.

Name Change Approved

On 20 May 2020 our Trustees passed a resolution formally changing our name to
The National Organisation for FASD.
Please bear with us as we formalise this legally and upgrade our website.

Trustee Recruitment

National FASD is recruiting up to three new trustees. Please see the ad here.

National Poll of Young Adults

A new national poll shows that young adults need more informatoin about alcohol in pregnancy. Click here for more information.

Calling Young People with FASD in the UK

We need your help to create two new songs about FASD!
Click here for more info! Send us your lyrics!


This campaign is for people under 25, the ones who can toss aside all the old excuses and inaction. It’s time for fresh perspectives and change. Have a look around, follow our new social media channels.

Announcing New Projects and our Upcoming Name Change

NOFAS-UK is pleased to announce some exciting new projects: A 3-year prevention project aimed at 15-25 year olds, funded by the Sylvia Adams Trust; an exciting partnership project with the Seashell Trust developing “Resources and Training to Support Children and Young People with FASD” (supported by the  Department of Health and Social Care); and a new state-of the art e-learning course that will be ready by November 2020.  

We also will be changing our name to the National Organisation for FASD. More details on all of these changes is available here.

FASD and Trauma – Parenting Tips for Carers

Written by foster carers Sue and Tony Sharp and co-produced with the E. Herts and Area FASD Support Network, this 4-page guide available here provides some advice from those with lived experience on how to parent at the intersect of FASD and trauma.

Stay-at-Home Guide for Kids with FASD

Fun ideas for things to do at home

What You Can Do About Coronavirus – a guide for those with FASD

We have prepared a guide for the with FASD, based on Public Health England’s “Five Things You Can Do” , it has a couple of pages specifically for young people. It’s available here. Stay safe everyone.

Draft NICE Quality Standard on FASD – Public Consultation

Please click here for a summary of the Draft NICE Quality Standard on FASD and how you can provide feedback via a survey from the FASD UK Alliance.

Recognising FASD – Pamphlet

A new NICE Quality Standard on FASD is coming in 2020 based on the Scottish SIGN 156 guideline. This pamphlet explains the diagnostic process. The pamphlet is available here.

Crisis of Commissioning: CCGs are Failing Government Policy on FASD

Report based on Freedom of Information requests to all CCGs and Trusts.  An Easy Read version also available. This report was covered in the BMJ.


NOFAS-UK now serves as the secretariat for the All-Party Parliamentary Group on FASD and has a new section of our website devoted to this.

My Brain, Me and FASD

My Brain, Me and FASD is designed to promote wellbeing among children with Foetal Alcohol Spectrum Disorders (FASD). It provides information in a fun and visual format, emphasising the strengths of those with FASD and highlighting strategies that can help.

If you are pregnant

If you are pregnant, or thinking of becoming pregnant, and want to know more about pregnancy and alcohol: