Welcome to NOFAS-UK

NOFAS-UK  (The National Organisation for Foetal* Alcohol Syndrome-UK) is dedicated to supporting people affected by Foetal Alcohol Spectrum Disorders (FASD), their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.  NOFAS-UK is a source for information on FASD to the general public, press and to medical and educational professionals.

NOFAS-UK has been leading the debates in the UK since 2003.  We value diversity and place a high priority on raising the voices of those with FASD, birth mothers, adopters, foster carers, kinship carers and all those who live with and seek to help those with FASD.  We are active in social media on Facebook, Twitter, and as a founding member of the FASD UK Alliance, via the FASD UK Facebook Support Group.

We are here to help.  Please check back frequently for updates on our work, and feel free to share any suggestions you might have as to ways we can further strengthen the community of people seeking change and support.

(* ‘Foetal’ is the British spelling; to search for medical studies and other resources online, use the international medical spelling ‘fetal’.)

FASD Wellbeing Workshop 12 January 2019 (London)

Where Body and Mind Meet: Understanding Sensory Integration

An opportunity to explore key issues affecting individuals with FASD and strategies for support in a relaxed atmosphere with a leading expert, Joanne Pennell, Consultant Occupational Therapist.

Open Letter to the Duke and Duchess of Sussex

An Open Letter to Prince Harry and Meghan, Huffington Post, 8 November 2018

NOFAS-UK Chief Executive Sandra Butcher writes an open letter to the Duke and Duchess of Sussex, thanking them for their leadership in promoting alcohol-free pregnancy.

FASD Stakeholders Meet with Deputy Chief Medical Officer

FASD Stakeholders: Future Policy Development on Issues Relating to Foetal Alcohol Spectrum Disorders (FASD)

Report from 22 October 2018 FASD stakeholder meeting convened by Deputy Chief Medical Officer Prof Gina Radford. See also additional input from UK adults with FASD.

My Brain, Me and FASD

To mark the 2018 International FASD Awareness Day, NOFAS-UK is pleased to launch an innovative booklet, My Brain, Me and FASD, designed to promote wellbeing among children with Foetal Alcohol Spectrum Disorders (FASD). It provides information in a fun and visual format, emphasising the strengths of those with FASD and highlighting strategies that can help.

Brain Base: FASD Wellbeing Summer Fun Days

NOFAS-UK and the East Hertfordshire and Area FASD Support Network launched an innovative pilot project, Brain Base: FASD Wellbeing Summer Fun Days, 28-30 August 2018. The hope is to bring this programme to more young people next summer.

Parliamentary Roundtable Report

Our Forgotten Children: The Urgency of Aligning Policy with Guidance on the Effects of Antenatal Exposure to Alcohol

Report from a roundtable discussion with FASD stakeholders, co-chaired by Professor Sheila the Baroness Hollins and Mr Bill Esterson, MP in the Houses of Parliament on 23 May 2018.

Hear Our Voices: FASD Stakeholders Share Their Experiences with Policy Makers

 Hear Our Voices (PDF)
Publication from the FASD UK Alliance based on experiences of individuals with FASD and families across the UK. See also media release about the 23 May 2018 roundtable discussion with MPs and peers.



Alternative Parenting Strategies



Cognitive Support Strategies for FASD (PDF)
Based on insights from Dr Cassie Jackson
Hard copies also available from info@nofas-uk.org

FASD Wellbeing Workshop

Featuring Dr Cassie Jackson and Andy Jackson

Resources now available – including video/PDF of presentation and graphics with top tips from small group sessions


If you are pregnant

If you are pregnant, or thinking of becoming pregnant, and want to know more about pregnancy and alcohol:





New Resource for Teachers and TAs

A new resource for teachers and TAs is now available from NOFAS-UK: “Teaching a Student with FASD”.  To download, click the image below.


Click to Download

The NOFAS-UK GP Survey was conducted by OnePoll between August 22nd and September 1st, 2017.  It polled 150 GPs that work in England.  Principal outcomes were as follows:

  • Only 31% has in-depth education regarding FASD
  • 41% have not received clear guidance regarding a pathway for diagnosis and support of FASD
  • Only 23% strongly agreed that they feel confident that all those with FASD are being diagnosed properly

Participants were recruited online and were paid.

Kids with FASD are Trying

“Kids with FASD are trying”. How you read that statement matters. Understanding the brain/behavior link in Fetal Alcohol Spectrum Disorders leads to better outcomes and happier families. We’re here to help, please contact us.

Download the poster.

kids with FASD are trying

After a Diagnosis

Information for parents/carers following a diagnosis of FASD by Dr. Cassie Jackson (née Hunt) Hunt), Highly Specialist Clinical Psychologist, Psychology Service, Suffolk Community Healthcare.

Download – After a Diagnosis (PDF)