Welcome to NOFAS-UK

sample_250NOFAS-UK  (The National Organisation for Foetal* Alcohol Syndrome-UK) is dedicated to supporting people affected by Foetal Alcohol Spectrum Disorders (FASD) and their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.  NOFAS-UK is a source for information on FASD to the general public, press and to medical professionals.

(* ‘Foetal’ is the British spelling; to search for medical studies and other resources online, use the international medical spelling ‘fetal’.)

If you are pregnant

If you are pregnant, or thinking of becoming pregnant, and want to know more about pregnancy and alcohol:

New Chief Executive for NOFAS-UK

We are delighted to announce that Sandra Ionno Butcher has been appointed Chief Executive of NOFAS UK, to take over from our founder and current Executive Director, Susan Fleisher, who is retiring. Sandra will start at the beginning of January, and Susan will be staying on for a period to ensure a smooth hand-over and transition.

Sandy comes to NOFAS UK with nearly 30 years of campaigning, fund-raising and organisational experience, working with diverse networks to create positive change in public policy. Most recently she served as executive director of the international Pugwash Conferences on Science and World Affairs, recipients of the 1995 Nobel Peace Prize.

She and her husband are co-founders of the E. Hertfordshire and Area FASD Support Network and are actively engaged in FASD awareness and support via the media, social media, and through a widely read blog – FASDLearningWithHope.wordpress.com

FASD Medical Advisory Panel


The panel was founded in 2004 at the Royal College of Medicine to bring together doctors, researchers and leading experts with the widest FASD experience and knowledge base. The panel advises NOFAS-UK on all medical projects and enquires.