Welcome to NOFAS-UK

NOFAS-UK  (The National Organisation for Foetal Alcohol Syndrome-UK) is dedicated to supporting people affected by Foetal Alcohol Spectrum Disorders (FASD), their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.  NOFAS-UK is a source for information on FASD to the general public, press and to medical and educational professionals.

NOFAS-UK has been leading the debates in the UK since 2003.  We value diversity and place a high priority on raising the voices of those with FASD, birth mothers, adopters, foster carers, kinship carers and all those who live with and seek to help those with FASD.  We are active in social media on Facebook, Twitter, and as a founding member of the FASD UK Alliance, via the FASD UK Facebook Support Group.

We are here to help.  Please check back frequently for updates on our work and feel free to share any suggestions you might have as to ways we can further strengthen the community of people seeking change and support.

FASD and Trauma – Parenting Tips for Foster Carers

Written by foster carers Sue and Tony Sharp and co-produced with the E. Herts and Area FASD Support Network, this 4-page guide available here provides some advice from those with lived experience on how to parent at the intersect of FASD and trauma.

Stay-at-Home Guide for Kids with FASD

Fun ideas for things to do at home

What You Can Do About Coronavirus – a guide for those with FASD

We have prepared a guide for the with FASD, based on Public Health England’s “Five Things You Can Do” , it has a couple of pages specifically for young people. It’s available here. Stay safe everyone.

Draft NICE Quality Standard on FASD – Public Consultation

Please click here for a summary of the Draft NICE Quality Standard on FASD and how you can provide feedback via a survey from the FASD UK Alliance.

Recognising FASD – Pamphlet

A new NICE Quality Standard on FASD is coming in 2020 based on the Scottish SIGN 156 guideline. This pamphlet explains the diagnostic process. The pamphlet is available here.

Brain Base: FASD Wellbeing Summer Fun Days

Plans are underway for two Brain Bases in Summer 2020. Please check back here for details, which should be available by the end of March 2020.

Crisis of Commissioning: CCGs are Failing Government Policy on FASD

Report based on Freedom of Information requests to all CCGs and Trusts.  An Easy Read version also available. This report was covered in the BMJ.


NOFAS-UK now serves as the secretariat for the All-Party Parliamentary Group on FASD and has a new section of our website devoted to this.

My Brain, Me and FASD

To mark the 2018 International FASD Awareness Day, NOFAS-UK is pleased to launch an innovative booklet, My Brain, Me and FASD, designed to promote wellbeing among children with Foetal Alcohol Spectrum Disorders (FASD). It provides information in a fun and visual format, emphasising the strengths of those with FASD and highlighting strategies that can help.

If you are pregnant

If you are pregnant, or thinking of becoming pregnant, and want to know more about pregnancy and alcohol: