To find your local candidates, enter your postcode here https://whocanivotefor.co.uk. Click through to find their contact details.
You can contact your candidates via email, regular post, Facebook, Instagram and/or twitter and let them know FASD matters to you and ask where they stand on FASD.
POSSIBLE TWEETS/SOCIAL MEDIA POSTS
I stand with those with Foetal Alcohol Spectrum Disorders and the families and professionals supporting them. People with FASD have a right to diagnosis and lifelong support for their neurodevelopmental disability. #UKElection2019 #FASD
I support healthy pregnancies through increased public awareness of the risks of alcohol in pregnancy. #UKElection2019 #FASD
You also can share the graphics below (the square ones are best for FB and Instagram, rectangles are for twitter). These are not branded with NOFAS-UK. Please feel free to use them widely (or create your own) to raise awareness of FASD and the risks of alcohol in pregnancy so long as you adhere to the UK charity/election laws as it relates to you/your group.
NOFAS-UK does not endorse any particular political party.
If you choose to email or write to candidates, here are some sample questions:
Do you support increased diagnostic capacity for FASD?
Do you support increased awareness of the risks of alcohol in pregnancy?
Do you support increased support for research into UK prevalence of FASD and its impact on society?
Do you believe people with lifelong organic brain damage due to alcohol-exposed pregnancies deserve appropriate assessments and support?
What will you do to help address this ‘hidden epidemic’ and to represent those in your constituency affected by FASD?
Do you support increased training about FASD?
Will you help constituents with FASD who are struggling for support in school and/or work?
NICE Quality Standard on FASD (coming in 2020):
The NICE Quality Standard on FASD will be based on the Scottish SIGN Guidance on Children and Young People Exposed Prenatally to Alcohol:
British Medical Association “Alcohol and Pregnancy”:
This is a critical time to demonstrate political will as the Department of Health, NICE and Scottish SIGN are taking action on FASD.
The UK has the 4th highest rates of alcohol use in pregnancy. [Source: Popova et. al – https://www.thelancet.com/…/PIIS2214-109X(17)30021…/fulltext]
FASD affects more people than Autism, Downs Syndrome and Cerebral Palsy combined. [Source: CANFASD – https://canfasd.ca/…/…/08/Prevalence-1-Issue-Paper-FINAL.pdf]
A recent screening study at Bristol University showed FASD may affect more than 6% in the UK but actual UK numbers are unknown. [Source: McQuire et. al – http://bristol.ac.uk/…/first-uk-prevalence-estimate-fasd.ht…]
Freedom of information requests showed that CCGs and NHS Trusts do not have policies for how to address FASD. 78% do not provide services for diagnosing FASD in children; 91% don’t provide services for diagnosing adults. [Source: NOFAS-UK – http://www.nofas-uk.org/…/A-Crisis-of-Commissioning-report-…]
FASD disproportionately affects looked after children and those who are adopted. [Source: Gregory et. al – https://journals.sagepub.com/d…/abs/10.1177/0308575915594985]
QUESTIONS ABOUT CHARITIES AND UK ELECTIONS?
Charity Commission Guidance on Charities, Elections and Referendums: https://assets.publishing.service.gov.uk/…/Charities_Electi…