17 May 2019 Informal Roundtable on Forthcoming NICE Quality Standard on FASD
NOFAS-UK hosted an informal roundtable on the forthcoming NICE Quality Standard on FASD in the week following the announcement. The discussion was co-chaired by Dr Raja Mukherjee and Sandra Butcher. This took place in the margins of the launch of the Greater Manchester Alcohol Exposed Pregnancies Programme.
The PDF of the summary and report is available here or by clicking on this image.
For more information about NICE quality standards
For those interested in seeing the format and content of NICE quality standards, some examples are here. As an example of a a quality standard that has been in place and revised over the years, the NICE quality standard on autism is here.
Register with NICE as a stakeholder for this quality standard
This page has information on how to register with NICE as a stakeholder on this quality standard. Your views matter!
BMJ story on NICE quality standard on FASD mentions NOFAS-UK’s work on CCGs
The British Medical Journal published an article about the announcement of the NICE quality standard on FASD. This is important because it’s widely read by doctors and health care policy makers. The article quotes Bill Esterson, Chair of the All-Party Parliamentary Group on FASD, “The news that NICE is to develop a quality standard for FASD is cause for optimism, but it must be backed up by action.” The article mentions NOFAS-UK’s report, “Crisis of Commissioning: CCGs are Failing Government Policy on FASD.” (CCGs are Clinical Commissioning Groups they commission services.)
NOFAS-UK is committed to working to help raise the voices of those with FASD and the people who love and care for them. We are pleased to do this in cooperation with the sister organisations of the FASD UK Alliance. Together we produced this joint report, “Hear Our Voices” highlighting some of the key areas of concern.