A Crisis of Commissioning: CCGs Are Failing Government Policy on FASD

Based on Freedom of Information requests to all Clinical Commissioning Groups and NHS Trusts and Health Boards, this report highlights the mismatch between government policy and actual practice. The vast majority of CCGs are not commissioning services for FASD prevention, diagnosis or post-diagnostic care for those with FASD.

Please click here for the media release that accompanied the launch of the report.
Click here for the BMJ article that covered this report.

PDF available by clicking on image. This report is 40 pages long.
If you would like a hard copy of the report, please contact us.

Policy Matters CCGs and FASD – Easy Read Version

This 4 page Easy Read version is available if you click on the image.
If you would like a white background for printing, click here.

What You Can Do

  1. CCGs exist in England. If you live in England, write to your MP and ask them to contact the local CCG and ask about FASD services in your area. To find the response (if any) from your local CCG, go to and search for the name of your CCG and ‘FASD’ then it should pop up. The same search will work for NHS Trusts. If you have any trouble doing this, please let us know and we will try to help.
  2. Ask your MP to join the APPG on FASD chaired by Bill Esterson MP. They can do so by emailing (NOFAS-UK now serves as the APPG secretariat.)
  3. Contact your CCG and ask them to meet with you and other stakeholders about FASD. Ask the CCG to encourage the Department of Health and Public Health England to provide more guidance about FASD diagnosis, support and training for professionals. Click here for more information about CCGs and to find your CCG.
  4. Contact your local media and explain the ‘local angle’ on this report from a national charity. “Local families unable to access services for brain-based conditions’. You can refer them to this media release which has quotes they can use from leading experts and other stakeholders.