The All-Party Parliamentary Group on Foetal Alcohol Spectrum Disorders exists to raise awareness of Foetal Alcohol Spectrum Disorders (FASD) and the potential dangers of drinking alcohol in pregnancy, in order to increase knowledge of this condition, to improve support for those living with FASD and reduce its prevalence in the UK. [Note: The APPG was suspended during the 2019 election, it will be reconstituted soon…]

“What am I asking for? I am asking for action on prevention and diagnosis, and action to cut the numbers, and for a sea change in our approach and our building of awareness among the population, including and especially among health professionals….

I am asking that the chief medical officer’s advice and guidance, which has now been accepted by the National Institute for Health and Care Excellence as well, be ​given much greater prominence and that we build awareness so that everyone understands it, especially, but not exclusively, health professionals. I am asking that we have a proper study of incidence so that we need not rely on the limited evidence of the Bristol University study. It was only able to make rough estimates, given the nature of its research, but if it is between 6% and 17%, it really does need that intervention and prevalence study….

We have to build greater understanding among health professionals and professionals right across the public sector. I have mentioned support as well. There needs to be greater support for those living with FASD—both those suffering from it and those caring for them— and those in education and elsewhere who are looking after them.”

Bill Esterson, MP, Chair APPG on FASD, Adjournment Debate on FASD, 17 January 2019

9 May 2019

In the meantime, the submission from Richard Clements is available here. Richard is father to a child with FASD and also a commissioner.

A video excerpt of Nyrene Cox’s statement is here. Nyrene has been trying for five years to get access to a diagnosis for FASD.

Report from APPG Meeting, 13 December 2018 (PDF)

From the Archives, December 2015

Please note: NOFAS-UK was asked to take over secretarial duties in late 2018. We were not provided with any records from the prior secretariat when it ceased operations.

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