What We Do

Trustee Recruitment

The National Organisation for FASD (formerly NOFAS-UK) provides support to people affected by Foetal Alcohol Spectrum Disorders (FASD) and their families and communities; campaigns to raise public awareness; and promotes relevant policies and practices. Having engaged new funding streams, it is now launching dynamic new programmes and poised to increase its impact greatly. It is seeking up to three new Trustees to join a dynamic and engaged Board, sharing their experience to shape the charity’s strategy.

Please find the full Trustee description and information on how to apply here.

Deadline 24 August 2020.

National Poll of Young Adults

New Poll Shows One Quarter of Young Adults Unaware that 
UK Guidance is to Avoid Alcohol in Pregnancy

The National Organisation for FASD has launched a campaign targeted at young adults.

4 June 2020

In April-May 2020 NOFAS-UK (now the National Organisation for FASD) engaged OnePoll to conduct two surveys to test awareness of the risks of alcohol in pregnancy and to see if the general population knows the national scientific guidance. 

OnePoll polled 2000 18-25 year olds across the UK. The results showed that:

  • 26% could not identify the current Chief Medical Officers’ guidance that the safest approach is not to drink alcohol at all if pregnant or if you could become pregnant.
  • 80% said if they or a loved one (e.g. a sister or friend) were pregnant, that having the occasional drink of alcohol would not be ok. However, their understanding of WHY this is important is limited.
  • Only 17% understood that alcohol can cause the most long-term harm to the baby when compared with other substances such as heroin, crack cocaine and smoking.
  • Only 22% knew that the acronym FASD stands for Fetal Alcohol Spectrum Disorder.
  • 49% are getting information about these issues from social media, while only 40% are getting if from a teacher and only 36% from a doctor, midwife or nurse.
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Launching PreventFASD.info

We are excited to announce the launch of our new prevention campaign at www.PreventFASD.info. Please click through and have a look.

This campaign is for people under 25, the ones who can toss aside all the old excuses and inaction. It’s time for fresh perspectives and change. Have a look around, follow our new social media channels.

This project is designed at its core to seek creativity and new ideas! This is the start of a 3-year project funded by the Sylvia Adams Trust. it features the award-winning film, RISK.

Announcing new projects and our upcoming name change

NOFAS-UK is delighted to announce some new projects that we are launching in addition to our ongoing work.

Name change

NOFAS-UK will be changing its name to the National Organisation for FASD. This reflects a national shift in thinking. FASD is finally being recognised by the Department of Health and NICE as a spectrum that has less to do with what a person’s face looks like and more to do with how alcohol exposure in the womb impacts how the brain and body develops. Over coming weeks and months we will be rebranding and updating our website with a fresh new look.

We’re launching a public outreach campaign aimed at young adults

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NOFAS-UK Projects


The NOFAS-UK Helpline responds to enquiries from parents, family members, carers and others needing advice or referrals for children with FASD disabilities. The Helpline also receives calls from pregnant women, midwives and medical professionals. In addition, NOFAS-UK works in cooperation with sister organisations in the FASD UK Alliance to co-administer the vibrant FASD UK Facebook group that supports more than 1,900 families.


NOFAS-UK organises events focused on wellbeing for families and carers of children with FASD. People with FASD and families share experience and advice. Parents gain mutual support from one another. Specialist speakers are invited to selected meetings. The Mitchell Family Trust and The Vintners Foundation kindly support our Wellbeing programme.


NOFAS-UK provides resources that help support those with FASD at home and in school. We make these available as widely as possible.


NOFAS-UK provides full day and half-day in-house training sessions to public and private organisations. We also work with a network of people who can provide trainings if we are not able to do so.

GPs & Midwives

NOFAS-UK works to increase professional understanding about FASD and the risks of alcohol in pregnancy among GPs and midwives via our publications, our online resources and via special projects. Diageo has provided invaluable support for this work over several years.

Public Health Policy

NOFAS-UK works with stakeholders to raise the voices and concerns of those affected by FASD with policy makers and change agents. We work in coalition with the FASD UK Alliance, a network of organisations across the UK seeking positive change.

FASD Online Course

A CPD registered online FASD course for medical professionals, parents and everyone interested in FASD.

Organisational Funding and Support

NOFAS-UK is grateful for the financial support of a range of individuals and funders who make our work possible. As a condition of receiving funding, NOFAS-UK maintains strict substantive independence over our work. Current and recent supporters include: The Sylvia Adams Trust, The Mitchell Charitable Trust, Diageo GB, the Vintners Fund and a range of individual supporters who have impressed us greatly with their creativity and determination.

We also rely on the goodwill and expertise of a range of volunteers who support our work in ways big and small. These include Elizabeth Mitchell (Helpline Advisor), Martin Carter (website) and a range of others, including medical, educational and scientific experts from across the UK and those with lived experience – people with FASD and their families and caregivers, as well as the leaders of sister organisations in the FASD UK Alliance. Thank you all!

Feedback from our Service Users

‘The NOFAS-UK Helpline team was amazing in helping me with some directions on how to deal with my adopted son. We will be in contact again as we seek to provide Luke with everything possible to meet his needs.’
Adoptive Parent

‘Your training was extremely eye opening. I had no idea of the huge effects of alcohol during pregnancy. Absolutely fantastic day.’
Social Worker

‘Your help with families like ours is invaluable. We have not been able to get the correct levels of support necessary from the ‘system’. Now we know you are there with your vast experience to listen, help and advise and give solace in the future and at worst of times, to rebuild our confidence. Keep up your excellent work NOFAS-UK.’
Mother of two children with FASD

‘Very thought provoking, emotional course. Surprised at how little alcohol it can take to cause this condition. More people need to be made aware of the dangers of alcohol in pregnancy.’