What We Do

NOFAS-UK Projects


The NOFAS-UK Helpline responds to enquiries from parents, family members, carers and others needing advice or referrals for children with FASD disabilities. The Helpline also receives calls from pregnant women, midwives and medical professionals. In addition, NOFAS-UK works in cooperation with sister organisations in the FASD UK Alliance to co-administer the vibrant FASD UK Facebook group that supports more than 1,900 families.


NOFAS-UK organises events focused on wellbeing for families and carers of children with FASD. People with FASD and families share experience and advice. Parents gain mutual support from one another. Specialist speakers are invited to selected meetings. The Mitchell Family Trust and The Vintners Foundation kindly support our Wellbeing programme.


NOFAS-UK provides resources that help support those with FASD at home and in school. We make these available as widely as possible.


NOFAS-UK provides full day and half-day in-house training sessions to public and private organisations. We also work with a network of people who can provide trainings if we are not able to do so.

GPs & Midwives

NOFAS-UK works to increase professional understanding about FASD and the risks of alcohol in pregnancy among GPs and midwives via our publications, our online resources and via special projects. Diageo has provided invaluable support for this work over several years.

Public Health Policy

NOFAS-UK works with stakeholders to raise the voices and concerns of those affected by FASD with policy makers and change agents. We work in coalition with the FASD UK Alliance, a network of organisations across the UK seeking positive change.

FASD Online Course

A CPD registered online FASD course for medical professionals, parents and everyone interested in FASD.

Organisational Support

We liaise with fostering organisations, schools and prison services and all others who are interested in developing their theoretical and practical knowledge about FASD.


Feedback from our Service Users

‘The NOFAS-UK Helpline team was amazing in helping me with some directions on how to deal with my adopted son. We will be in contact again as we seek to provide Luke with everything possible to meet his needs.’
Adoptive Parent

‘Your training was extremely eye opening. I had no idea of the huge effects of alcohol during pregnancy. Absolutely fantastic day.’
Social Worker

‘Your help with families like ours is invaluable. We have not been able to get the correct levels of support necessary from the ‘system’. Now we know you are there with your vast experience to listen, help and advise and give solace in the future and at worst of times, to rebuild our confidence. Keep up your excellent work NOFAS-UK.’
Mother of two children with FASD

‘Very thought provoking, emotional course. Surprised at how little alcohol it can take to cause this condition. More people need to be made aware of the dangers of alcohol in pregnancy.’