Advice for Someone with FASD

What You Can Do About Coronavirus – a guide for those with FASD

People with FASD and their families can take some steps to help prepare for coronavirus. NOFAS-UK has prepared a summary of Public Health England’s “Coronavirus (COVID-19) – 5 things you can do to protect yourself and your community”. We have made it more accessible and included some bits specifically for those with FASD (or other neurodevelopmental conditions)

A PDF of this 6-page summary is available here. Pages 1 and 4 might be useful to print, especially for younger people.

There is a great video about hand washing by the Purple All Stars from Hertfordshire that you might want to share with your kids.

2019 Brain Base: FASD Wellbeing Summer Fun Days

For details about last year’s programme, click here. Great fun was had by all!

We had an amazing Brain Base 2019. A huge thanks to all the young people, parents/carers and speakers who joined us! And especially to the talented team that made this possible. More details will be available soon from our event.

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My Brain, Me and FASD

To mark the 2018 International FASD Awareness Day, NOFAS-UK is pleased to launch an innovative booklet designed to promote wellbeing among children with Foetal Alcohol Spectrum Disorders (FASD). It provides information in a fun and visual format, emphasising the strengths of those with FASD and highlighting strategies that can help.

My Brain, Me and FASD (PDF)

My Brain, Me and FASD was developed as a resource for our Brain Base: FASD Wellbeing Summer Fun Days. Building on the success of that programme, we hope to get this into the hands of as many children and young people with FASD as possible.

If you would like to order a hard copy, please send an email with your complete address to: info@nofas-uk.org. The booklet is free. That said, if you are able, we would appreciate help in covering printing, shipping and handling costs (we are not making any money off the sale of this booklet): £2 in the UK and £5 for international requests. We can provide payment details when you contact us.

 

Diagnosed with FASD?

Information for people who have been diagnosed with or think they may have Foetal Alcohol Spectrum Disorder (FASD).

Foetal Alcohol Spectrum Disorder (FASD) is the term for a range of preventable alcohol related birth defects. Having FASD doesn’t mean you cannot be successful in life.

These are some things people with FASD find helpful. Choose the advice that you think will work for you:

  • Try to have routines in your life.
  • It’s okay to ask people to repeat directions or instructions as this might help you remember things.
  • Tell people you may need more time to understand and remember information.
  • It is easier to do or learn one step at a time. Finish one task before you start another.
  • To remember things, write them down. You could try using a diary.
  • It’s okay to ask a parent or friend to come with you to appointments or interviews.
  • Using money and telling time can be difficult. Ask someone you know and trust to help you.
  • If you feel overwhelmed, angry, frustrated, tired or emotional – find a safe place to calm down or ask for help.
  • Concentrate on good things you can do and things that make you happy.
  • Tell people you have many strengths and things you are good at.
  • Ask your GP how to get a medical diagnosis of FASD if you don’t have one.
Discussion Paper (we will be posting more information for adults with FASD soon)

Parents Who Have FASD

Further information

If you need to talk to someone or need more information you can:

  • Talk to your GP
  • Call the NOFAS-UK Helpline on 0208 458 5951

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