FASD and Wellbeing

Calling all young people with FASD in the UK

Please help us create 2 new songs about FASD!

Please watch this video ↑ where Flis explains how you can help.

Send us your ideas!!

We are creating two new songs by and for young people with FASD in the UK.

This is the first part of the project. We are asking young people with FASD to please send us some lyrics:

• What makes you special?

• What are your favourite coping strategies?

• What do you want people to know about living with FASD?

Please email them to info@nofas-uk.org.

You can send them to us any way that you like – a video, audio, a drawing, a poem, etc. Flis will collect all these ideas and use them to write the songs. Next, after we have all the lyrics, Flis will be back in touch for more help singing and performing the music and the songs.

This project is funded by the Department of Health grant to the Seashell Trust/NOFAS-UK and the songs will be part of a new “Me and My FASD” toolkit that will be made available to all in the UK free of charge. By emailing us you are providing NOFAS-UK (The National Organisation for FASD) permission to use these entries in its materials and social media. Responsible adults/parents/carers – please include your young person’s first name and age if you would like that listed in the credits.

We are SO excited about this project and can’t wait to hear what the young people have to say!!We’re thrilled to be teamed up with the Seashell Trust for this project!

2019 Brain Base: FASD Wellbeing Summer Fun Days

For details about last year’s programme, click here. Great fun was had by all!

We had an amazing Brain Base 2019. A huge thanks to all the young people, parents/carers and speakers who joined us! And especially to the talented team that made this possible. More details will be available soon from our event.

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FASD Wellbeing Summer Fun Days

The Brain Base: FASD Wellbeing Summer Fun Days
28-30 August 2018
Co-organised by NOFAS-UK and the E. Herts & Area FASD Support Network this pilot programme brought smiles to the faces of young people with FASD and those who love them from across the country. We hope to build on this summer’s experience next year, we are seeking funding to bring this innovative programme to different parts of the country, working in cooperation with local partners via the FASD UK Alliance.


Brain Base – Overview & Evaluation

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FASD Wellbeing Workshop – Living in the Here and Now

On 28 October 2017, the first NOFAS-UK FASD Wellbeing Workshop, ‘Living in the Here and Now,’ featured Dr Cassie Jackson, Highly Specialist Clinical Psychologist, and Andy Jackson, member National FASD Advisory Committee. The workshop featured presentations followed by Q&A (not filmed) and scenarios for small group problem solving. NOFAS-UK seeks to maximise the impact of these workshops by freely sharing the insights and content.  You are not alone!

Dr C. Jackson “Living in the Here and Now” NOFAS-UK FASD Wellbeing Workshop (PDF)

Top tips from the small group breakout sessions: Continue reading

London FASD Wellbeing Workshops

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We have re-branded our London support group, to emphasise our focus on promoting positive strategies for living with FASD.  Presentations from our newly framed Wellbeing Workshops will be videotaped and made available for all, along with related resources and any supporting materials.

For ongoing support

NOFAS-UK is proud to be a member of the FASD UK Alliance, a coalition of groups and individuals from across the UK who are united together for positive social change for those affected by Foetal Alcohol Spectrum Disorders (FASD). The FASD UK Alliance has support groups spread across the UK.

In addition, the FASD UK Alliance hosts the largest and most vibrant UK online support group on Facebook: FASD UK. Please consider joining us there for daily support and insights.

The NOFAS-UK helpline is 020 8458 5951.  Our helpline advisor is available on Wednesdays if you would like to speak with someone from NOFAS-UK, or you can email help@NOFAS-UK.org.

If you are in crisis

Please know there is always help via the Samaritans, 24/7, free any time, from any phone if you dial 116 123.